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Post by caz2golden on Dec 13, 2016 15:54:49 GMT
Think I am now 'Confused.com' Good luck later at getting all the info you need.
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Post by barley on Dec 13, 2016 16:14:45 GMT
Think I am now 'Confused.com' Good luck later at getting all the info you need. You & me both!
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Post by scallywag on Dec 13, 2016 16:29:07 GMT
wonder if gypsy has better info ?
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Post by barley on Dec 13, 2016 19:04:30 GMT
wonder if gypsy has better info ? Maybe. It's very rare though so wonder if she's not come across it either? Anyway managed to have a good chat with my vet when he came to the office. He had a read through the Westie info I had printed out (thank you so much scallywag, this really has been a great help) and said it all sounded very sensible and was stuff he wasn't aware of. He said we can do the venous blood gas testing but didn't know where/who we get it done by - rang back to the surgery and told receptionist to ring AHT & Dick White Referrals to see if either of them did. Receptionist rang back few minutes later saying AHT did so vet said he would ring them to refer us. Vet was very honest and said he felt very helpless as he had just never diagnosed it, and neither had the other two vets at the practice all with 30+ years experience and had taken the AHT's word that there was nothing that could be done. As absolutely incredible as they are, I wonder if even the AHT have much experience with it given how rare it is? Anyway only about ten minutes after he left, the AHT rang me to book an appointment so vet must have called them literally as soon as he got back in the car from the office. Spoke to a Mr Worland who said he was an European specialist in internal medicine and is very interested in Alfie's case as he had never seen Fanconi Syndrome in a dog that wasn't in a Basenji (they're genetically predisposed). We have an appointment for 10.30 next Tuesday and he will have the venous blood gas testing done then and talk about where we go from here. He said he is going to invite some colleagues to the appointment so really I think it will be quite thorough! Disappointing that appointment isn't until a week away (I am so impatient and want answers NOW where Alfie is concerned) but if they're fully booked then they're fully booked, so next week it will have to be. I am just glad we have some kind of action plan in place, which is better than what we had this morning.
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Post by caz2golden on Dec 13, 2016 20:41:00 GMT
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Post by barley on Dec 13, 2016 21:07:16 GMT
Thanks, yes it was the AHT that mentioned to my vet about the jerky treats yesterday.
Just feel out of my depth. Tuesday can't come soon enough, but scared in the mean time.
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Post by caz2golden on Dec 13, 2016 21:28:33 GMT
I would be a mess if I was you, you are honestly doing grand. I also would be wanting to get to specialist appointment asap. If you are like me it is the unknown that is eating you up! Once you have a positive diagnosis and a treatment plan (be it altered diet and/or medication) if you are like me you will quickly find your feet again. Just go give Alfie big cuddles from all of us And sending you a big bear hug from me
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Post by cazypops on Dec 13, 2016 22:10:59 GMT
Things must be so frustrating for you at the moment barley. Keep your chin up hun, a week seems a long time right now, but just take it a day at a time and it'll soon be here. Keep us posted on how Alfie is doing, and you too, we're here if you need to vent. {{HUGS}}
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Post by gypsy on Dec 14, 2016 0:52:09 GMT
caz2golden the problem is that my vet is saying (that the AHT said) that there is no treatment for Fanconi syndrome so we don't have any treatment to start and it's a case of the kidney is damaged and that really is that. As much as I like my vet, I can't accept that when I am reading stuff online that suggests otherwise! The treatment for lepto is doxycycline which in itself can cause Fanconi in rare cases would you believe! So vet is reluctant to start on that until we know for sure whether it is needed or not. Vet said it's highly unlikely it's lepto and I agree. Vet this morning went through blood results from yesterday and the kidney ones - BUN and CREA is it? They're perfect, literally smack bang in the middle of where they should be. Liver fine also and the blood glucose & calcium levels are perfect too. The vet is coming to the office at 5 anyway so I will not let him leave until questions are answered! Sorry barley I have no experience with Fanconi syndrome. I mentioned it to my husband who knew what it was but again no experience. Its interesting your comment above because based on these positive results and Alfie's symptoms, it made me think of Diabetes Insipidus. Its very different to 'sugar' diabetes but presents with the same symptoms and normal blood results. Is Alfie's urine always very clear and dilute - even first thing on a morning? Does it ever look concentrated?
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Post by tonib on Dec 14, 2016 1:40:00 GMT
Good news on the BUN & CREA levels barley - you're right they are the main kidney issues indicators - although that can be affected by some other things (I learnt a lot with our Penny's kidney problems). I think we all would be like you, wanting appointments sooner rather than later, but at least your vet has listened & referred you to AHT just a shame they are booked up. By the sound of it you should be charging them for an education opportunity or at least getting a reduction - somehow I don't think that'll happen though!! Fingers crossed for you & Alfie on Tuesday. Try to relax (if you can) between now & then.
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Post by barley on Dec 14, 2016 9:51:27 GMT
I would be a mess if I was you, you are honestly doing grand. I also would be wanting to get to specialist appointment asap. If you are like me it is the unknown that is eating you up! Once you have a positive diagnosis and a treatment plan (be it altered diet and/or medication) if you are like me you will quickly find your feet again. Just go give Alfie big cuddles from all of us And sending you a big bear hug from me Thank you xx - yes it's the unknown and also the conflicting information that is driving me insane. I get my hopes up that he can be helped, because that's what I'm reading, and then the vet tells me there is nothing that can be done. It's really upsetting and I just need to know which one it is. The only positive is that Alfie is blissfully unaware. Apart from the drinking & peeing, he is fine in himself. Things must be so frustrating for you at the moment barley . Keep your chin up hun, a week seems a long time right now, but just take it a day at a time and it'll soon be here. Keep us posted on how Alfie is doing, and you too, we're here if you need to vent. {{HUGS}} Thank you xx - I have rang the AHT this morning to see if there is any way at all he can be seen sooner. I know it's a long shot but next Tuesday seems forever away. caz2golden the problem is that my vet is saying (that the AHT said) that there is no treatment for Fanconi syndrome so we don't have any treatment to start and it's a case of the kidney is damaged and that really is that. As much as I like my vet, I can't accept that when I am reading stuff online that suggests otherwise! The treatment for lepto is doxycycline which in itself can cause Fanconi in rare cases would you believe! So vet is reluctant to start on that until we know for sure whether it is needed or not. Vet said it's highly unlikely it's lepto and I agree. Vet this morning went through blood results from yesterday and the kidney ones - BUN and CREA is it? They're perfect, literally smack bang in the middle of where they should be. Liver fine also and the blood glucose & calcium levels are perfect too. The vet is coming to the office at 5 anyway so I will not let him leave until questions are answered! Sorry barley I have no experience with Fanconi syndrome. I mentioned it to my husband who knew what it was but again no experience. Its interesting your comment above because based on these positive results and Alfie's symptoms, it made me think of Diabetes Insipidus. Its very different to 'sugar' diabetes but presents with the same symptoms and normal blood results. Is Alfie's urine always very clear and dilute - even first thing on a morning? Does it ever look concentrated? Thank you, and thank you for asking your husband too, I appreciate it. xx Diabetes insipidus hasn't been mentioned I don't think, I'll check with my vet, thank you. Alfie's urine is concentrated first thing in the morning, very yellow. It does get quite dilute throughout the day because of the amount he's drinking, but it still has some colour to it. Good news on the BUN & CREA levels barley - you're right they are the main kidney issues indicators - although that can be affected by some other things (I learnt a lot with our Penny's kidney problems). I think we all would be like you, wanting appointments sooner rather than later, but at least your vet has listened & referred you to AHT just a shame they are booked up. By the sound of it you should be charging them for an education opportunity or at least getting a reduction - somehow I don't think that'll happen though!! Fingers crossed for you & Alfie on Tuesday. Try to relax (if you can) between now & then. Thank you xx - the AHT are going to ring me back about possibility of bringing it forward a bit, so I'll keep you posted.
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Post by barley on Dec 14, 2016 11:37:36 GMT
AHT tomorrow @ 11.30 - always worth an ask!
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Post by alfiemummy on Dec 14, 2016 12:18:07 GMT
Great news barley. Hope you can get some answers!
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Post by tonib on Dec 14, 2016 13:36:29 GMT
That's really good news barley, we'll all be keeping everything crossed for the pair of you.
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Post by cazypops on Dec 14, 2016 22:05:47 GMT
That's great news barley, I hope you can get some sleep tonight. How long will it take to get the test results back?
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